Part 2:
I had enough sulking. I wasn't going to
die from cancer. I had surgery scheduled, and it was going to be
weeks before life was “normal” again. It was time to see what
cards I had to play, and to play them.
I wasn't going to accept being trapped.
If crutches were my new form of mobility, I was going to become
mobile. I started cautiously. I had no idea if this was feasible, or
just insane. The terrain in Frostburg is far from flat, and I wanted
miles. I didn't even know if I could crutch up the huge 400 vertical
ft hill in my neighborhood. The first day I went to the bottom of my
street and back: ½ mile. The next day I did 1.5 miles. Then 2 miles.
I could do this.
I was going to take calculated risks.
It was too long to live in a bubble, but I didn't want to be
pigheaded either. Being reckless had a high cost, after all, I'm fond
of my hip bone and there wasn't much left of it in that spot!
I was going to take everyday risks.
Going into my basement to do jewelry (which I actually didn't make
any jewelry, but I made sure I -could-). Weeding the garden, I
managed to use an oscillating hoe and hop on one foot to weed the
entire garden every few days. One day early on I was actually so
frustrated I cut my entire 1 acre yard with a one handed scythe while
hopping on one foot. My life was not going to go “on hold”, I
would adapt, but not stop.
I love problem solving, and this was
one big goddamned problem.
I prioritized “low risk” activities
over high risk ones. I relearned website design. I learned about
dorky computer things. I don't really “love” those activities,
but I could tolerate them. I passed the time, not by wasting it, but
by optimizing it for the tools I could use.
The time did pass. Fast actually,
although I still wish it went faster. As it got closer what surgery
actually was started to dawn on me. “Fix it, just fucking fix it”
were my thoughts for so long that I didn't immediately comprehend
what that fix was. I'm a pretty healthy fella, and I've certainly
never been cut open and had another person rearrange my internal
parts. I wasn't really comfortable with this. I've always been
slightly scared of needles, they are far from my most favorite of
objects in this universe. It dawned on me that a needle was actually
not the most terrifying object I was going to face; a scalpel was
much scarier, and until now, I never had to fathom one being anywhere
near me. I was not okay with this, but if I wanted to walk again, I
was going to get over it.
It didn't hurt. So many times I would
forget. I would forget that there was something wrong. Drift off to
think about the bike ride I could be on, or where I felt like walking
Oy, then I'd open my eyes and see my crutches and think “fuck”,
while hoping this was some sort of trick, a mistake—any minute I
would get a phone call saying, “oh, that wasn't an x-ray of your
leg, you're fine”. I would blink and the crutches would be gone
and I would look at Oy and go, “lets walk”. It didn't hurt, I
couldn't see it. I kept hoping it would just go away, disappear into
the abyss where it came from.
I waited, and waited. July 3 was
coming, but so goddamned slowly. Finally a week before, the pre op.
A 6 inch cut. A fucking 6 inch cut
through my flesh and muscle to scoop out the “stuff”, then a bone
graft/metal plate, that's what they were going to do.
Even after the surgery, within 2 years
there was up to a 20% recurrence rate, which I was not excited about.
A recurrence meant another surgery. Up to 3 surgeries could be
needed.
Cancer was still not 100% off the
table. 95% chance that this was benign, but the pathology report
pretty much said the exact composition was strange given my age—it
was typical (and even normal) for what would be found in someone
15-25, not a 31 year old. They could either do months of biopsy
samples, or go in, take it out and test it on the spot. If it was
fine, they would continue with the surgery. If it was cancer they
would close me up, and come up with plan “b” which would require
me losing part of or all of my hip in another surgery. I wouldn't
know until I woke up. The thought of waking up from the surgery to
have the Dr. tell me that news was almost unbearable. I was holding
on so far, a little pushed and worn, but holding on—if I woke up to
that news i'd lose it, I knew it, and that in itself terrified me. To
see the horizon of how much shit I could handle scared me. The idea
of going through with this surgery only to have to do more nearly
brought me to tears. I was terrified in a way I had never been
before. I was so fucking helpless.
Prior to this experience I think I had
never truly known fear. I had known the trivial lookalikes. I was
scared, really really really fucking scared.
It is one thing to “believe in
yourself”, you know, overcome those mental barriers that the world
puts in front of you. It is quite another thing to believe in your
subconscious self, to believe that after being cut open your body
knows what to do, can heal itself, and overall keep you alive while
sustaining major damage.
The night before the surgery I was
terrified. I might've actually hugged Oy for over 3 hours. I told him
he better not let anything go wrong, as if he had that power.
The morning of I hopped in my parents
car and went off to Morgantown.
I had never been in a surgery waiting
room, the screens showing the patient numbers and their status
reminded me of a mechanic shop with a fancy status display. I felt
like I was going into the “shop”. The surgeons all came into the
waiting room after the surgery and gave anxious families the news. I
only saw good news. This vision of “bad news” coming to my
parents who were waiting horrified me.
I was called to go into prep, went back
and got ready. The last thing I remember was laying on a solid table
in the operating room, and the surgeon saying, “you won't remember
any of this”.
I woke up muttering, “ouch, ouch,
ouch”. The nurse said, “don't you worry, i'll take care of that”.
She did.
I insisted “the biopsy, what were the
results?”, “how did the surgery go?”, “am I okay?”. The
woman said, “I don't have any of the info”, then increased my
drugs.
Finally I heard no cancer. Everything
went well and as planned.
I was “moved” onto a hospital bed
in an inpatient room. I saw my parents and my friend who came to see
me. I cried. I simply fucking cried. As someone who experienced it
from the patient side, if you ever have a friend having surgery, go
see them when they are done. It matters.
I'll leave out the details of that
night. The people in the room with me were worse than reality TV
obnoxious, and I personally did not enjoy most of my scheduled
activities.
In the morning the physical therapist
came to see me. A young girl, mid twenties. She smiled at me, gave me
a pair of hospital pants and said, “put these on, we are going to
go for a short stroll on your crutches”.
Twenty minutes later when I still
couldn't get my right leg in, she helped. They were not kidding when
they warned me about what happens when muscle is cut. The entirety of
my leg pretty much went straight and stiff.
The therapist laughed and said, “Know
how that really hurts when you even bend it a tiny bit? Well, you're
going to have to get through that, and keep bending it, all the time,
until it no longer hurts.”
I hobbled down the hallway with her for
a few feet and then back to my bed. Just the vibration from using
crutches hurt, and I was heavily drugged. I got back into bed and
they said, “ok, we can work on sending you home—you'll be out
about noon”.
They wheeled me to the front where I
got into my parents car. It took a long time to get in, it was really
all I could do to bend me knee enough to fit it inside the door.
Those muscles were not interested in moving.
I closed my eyes and just about woke up
in Delaware at my parents house (I got out a few times but really I
was in a full drug haze).
The first few days, I slept, ate,
slept.
I was a jerk, I read somewhere that
berries help heal wounds fastest and I bugged my parents for endless
supplies of organic blueberries and strawberries. My parents are
amazing and got them for me. That kale, broccoli, organic chicken and
eggs were just about all I would eat. OJ, almond milk and water is
all I would drink—no useless calories were going in.
By day 3 I was off of the heavy pain
drugs. The haze cleared. By day 4 I was really up and moving, almost
as good as pre surgery. By day 6 the wound was healed (or the surface
at least), and day 8 after surgery my parents brought me back to
Frostburg, I was ready to go.
My mind is still blown by how fast it
seems to be healing. I'm not done yet. It could be 6 weeks or more
until the bone is healed enough to hold weight again, but this is the
upside of the experience I hope. I'm ready for a break in the
universes choice of “surprises”, maybe it could switch into
“baked goods” mode.
This experience really made me
appreciate my friends and family. My friends who went to Dr's apts
with me, brought me food, groceries, cookies. My friends who have
been helping with my grass, or watching Oy during the times I
couldn't. My friends who offered moral support or offered to help,
even though I said no often, I really appreciated the gesture (I'm
really stubborn and independent, sorry!). My family who stood by me
this entire time ready to step in and help at any moment, and who
took care of me when I couldn't take care of myself. Really, I love
all of you—as much as I don't like asking for help, I could not
have done this one alone. Thank you.